What's up

Apr. 12th, 2018 04:30 pm
mme_hardy: White rose (Default)
The hospitalist apologized to us for giving the impression that Dad was dying immediately. She can't actually predict. The next fall, the next cold, the next major incident of any kind will kill him, as could the continuing exhaustion of the heart. His hands and feet are cold and mottled. Could be weeks, could be months.

Dad came into the hospital because of a fall and pneumonia and heart troubles. While he was there we discovered that he had moderate-to-severe Alzheimers that Mom had been able to downplay because it had come on day by day. The hospitalist asked me, because I'd seen Dad last fall, what percentage of decline I'd noticed, and she said my face told the story.

We had his implanted defibrillator turned off, because when the heart is at end-stage failure the defibrillator can shock the heart over and over again when the patient is actually dying: pain to no purpose.

He kept asking about death today: whether this was the end, how many centuries had it been, and had eleven died yet. The hospitalist (who was very good, very compassionate, and very straightforward) said that it could be the dementia speaking, but that some of her patients did seem to have a strong and accurate premonition of death. He also spent a lot of time staring blankly into space. When Mom was in the room, his face followed her like a sunflower to the sun.

It's been a hard few days, and probably won't get much easier. Mom is coping with the diminution of a 61-year marriage. Mom is also losing a step or two herself. My brother and I are going to keep as watchful an eye as we can, with frequent check-ins in person.

Adulthood sucks, y'all. Flying home Monday.

e: I told my husband, shamefacedly, that I envied him, because his father had woken up in the night, taken one step, and died. My husband said that I was right.

Dad update

Apr. 8th, 2018 10:19 am
mme_hardy: White rose (Default)
Talked to my brother and my sister-in-law. Mom is using Dad's cellphone -- I had two old numbers but not the current one -- which doesn't have my number in it, so she passed messages through my wonderful sister-in-law. Texted my mom so she'd have my number.

So. It sounds like Dad is sometimes, rarely, awake, but not lucid; no indication that he's said anything since Saturday morning. My first impulse was to hop the next jet to Indiana; it's a 12-hour trip counting getting to the airport and getting from the airport to home. (Home. Haven't lived there in 40 years, but still.) Talked things over with brother; he thinks that the worst is likelier days than hours, and possibly farther away than that; we simply have no info. Lots of tests, no answers.

Dad's been having major falls, including through the glass of an Apple store (oog), and has problems with short-term memory. He's not the man he was even two years ago. He's 85, 86 in two days. If he's even aware of that.

Brother will be making the 8-hour drive up from Atlanta today, and will let me know what he thinks. We agree that Mom is apt to put a rosy picture on things, so we don't really know what's going on even with the very limited information she gave us. On the other hand, Mother doesn't need the worry of two children in town unless it really is an emergency; if both of us are home she may be distracted by trying to take care of us.

So. Sitting here, with no information, no way to help, and nothing to do but wait. It's hard.

I know a lot of you have been through this decline process before, and I know you've made it through.

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mme_hardy

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